Shared Lives, a community based service for adults with learning disabilities and other social care needs has recently been launched in Lambeth and is being delivered by Grace Eyre, a charity with over 100 years’ experience. The service enables people with learning disabilities and other social care needs to live life to the full in their community without having to live on their own, or in a care home. It gives people the opportunity to live in a family setting in their local community, offering individuals a unique alternative to the more traditional residential care.
WHAT IS A SHARED LIVES CARER?
A Shared Lives Carer is someone who opens up their home and family life to include an adult with support needs. Shared Lives Carers come from all walks of life and don’t need qualifications or experience, just the right attitude and a willingness to truly share their lives with another person. Shared Lives Carers are carefully selected and trained by a regulated Shared Lives scheme. They are paid a fixed amount per week and have access to preferential tax arrangements.
At Grace Eyre Shared Lives we recruit, assess and support our Shared Lives Carers to provide family based arrangements to adults with a range of disabilities and needs within the carers home.
We are looking to recruit and provide training to people to become Shared Lives Carers.
A visit will be arranged to your home. At this visit the assessment process will be explained and one of the Shared Lives team will ask to look around your property, ensuring that your home is suitable in terms of cleanliness, space appropriate accessibility.
The bedroom will need to meet the following standards:
• a reasonable sized room with adequate furniture in a good clean condition and in decorative order
• adequate storage (wardrobes/drawers)
• Communal space should be spacious enough to enable the Service User to be able to engage with all the people that live in the property.
If the potential Carer’s home meets these requirements, the recruitment process will move to the next stage known as Assessment.
The Shared Lives Coordinator will arrange to visit you again to begin the assessment process. This will include discussing aspects of your application, such as your background, personality, lifestyle, health issues and locality. This is a detailed assessment, which will include separate discussions with other members of your household (including children).
The number of visits will depend on how long it takes to acquire all necessary information. At any point during the assessment process your application may be declined or withdrawn.
You do not need any formal skills or qualifications but will need to be able to devote time and energy to enable a person with a disability to develop to their full potential.
You will be required to undergo training and all new carers from April 2015 must achieve the new Carers Certificate. The Care Certificate is an identified set of standards that health and social care workers adhere to in their daily working life.
You will be invited to a series of training sessions before your application is fully approved. The training will cover areas that are relevant to becoming a carer such as communication skills, health issues and learning disabilities, moving and handling. The Care Certificate will enable you to gain all the required skills and you will be supported through the Grace Eyre Shared Lives Scheme to gain the certificate which is also transferable to some other social care roles.
You are required to attend training as part of the assessment process. You will also be required to update your training on a regular basis and your Shared Lives Coordinator will support you with this.
The Local Authority/Council makes payments to Grace Eyre for the service you provide. Payment is calculated by the Grace Eyre finance team with regard to the length of stay and support needs of the individual.
Payments are made gross to the carer. It is the responsibility of the carer to notify HM Inspector of Taxes each year of the relevant tax return of the gross sum received (further information is available on the internet).
HMRC have produced an e-learning package for Shared Lives Carers, to help you evaluate how much tax and national insurance you will be expected to pay on your earnings as a self-employed carer using 'qualifying care' tax relief.
Below is an interview with one of our Shared Lives Carers, Jane and she talks about her role in supporting a young man, Johnny who has learning disabilities (names have been changed for privacy) and this gives a flavour of what the role is all about.
A Day in the Life of a Shared Lives Carer
Jane, let’s talk about a typical day in your role as Shared Lives Carer. What time do you get up?
I get up about 7.30am. Johnny gets up earlier and very kindly brings me a peppermint tea!
So what do you do both do first thing?
I get up and get ready. Johnny is very able and gets himself ready. I check he’s had a shower, make sure he’s taken his medication and I also just check that he’s got appropriate clothing on for the weather of the day, as sometimes he can misjudge this.
What do you have for your breakfast?
I get my own breakfast and I’ve been supporting Johnny to cook and make his own breakfast. So he’ll often have porridge, toast or something like that and once a week he makes himself a cooked breakfast – a full English!
What is your typical day like?
In the morning we’ll talk about Johnny’s plans for the day, where he’s going and what he’s doing. So some days he might be going to the day centre where he undertakes activities such as going to the gym and going swimming – he loves keeping fit! He’s also got a volunteer job in a café.
When Johnny first came to stay he said he wanted to get out and do things such as volunteering so I supported Johnny to attend a Travel Training programme and after 2 years on the programme and me helping him practice his journeys, he is now an independent traveller. He has also become a volunteer travel buddy himself and supports other people with learning disabilities to learn to travel safely.
On the days Johnny doesn’t go to the centre, he goes to the local gym where he also has a volunteer job cleaning down the machines. Johnny also uses the gym himself. Afterwards he goes out for lunch with his work buddies and he loves doing this! He then normally goes to the library and gets his DVDs for the week.
Wednesday is Johnny’s cleaning day so in the afternoon, he’ll come home and do the hoovering, sweep the floors, clean the bathroom, tidy his room and change his sheets etc. I have developed an accessible visual tick list with pictures of household jobs so Johnny knows what he needs to do.
I normally get home about 4.30pm/5pm. Johnny likes to eat out, so he chooses one evening a week when we’ll go out to eat. There are lots of pubs and restaurants that do mid-week specials so he will choose one of those to keep costs down. On other evenings, Johnny might go out to see his friends. He has an accessible mobile phone to keep me posted on what his plans are so he can call if he’s going to stay at a friend’s for dinner.
In your view, what is Shared Lives and what is its aim?
For me it’s about supporting someone and having the patience to support someone to learn new skills in their own time. You want the person living with you to be as independent and a part of their community as much as possible. It also provides a natural realistic environment to live in and to learn new skills – so much better than a care home or residential care.
In order to help Johnny become part of his community, when he first moved in I took him to all the local shops and pubs and anywhere Johnny would be interested in going and introduced him to the people working there. We developed relationships with local amenities and businesses. I also left my phone number with tem, in case he got lost and came to them for help so they could call me. I now feel that he has a good safety net. He can go to the pub with his friends and I know the landlord will call me if there’s any problem.
When, why and how did you become a Shared Lives carer?
I became a Shared Lives Carer 2 years and 3 months ago. I was working within special needs and I saw first-hand what happened to a poor gentlemen with learning disabilities who lost his mother. Within a matter of days he lost everything, his mother, his home and every bit of security he had previously known. It was a terrible situation and I really felt for this gentleman. The charity I worked for ran a Shared Lives scheme and I decided to look into becoming a Shared Lives Carer and here I am 2 years later living with Johnny.
What skills do you need to become a Shared Lives Carer?
Many are skills you can learn but the key ones are: understanding and patience. You really need to understand the long term commitment and you also need a genuine interest in seeing someone develop. You need to get to grips with the processes and paperwork but if you apply to be a Shared Lives Carer, Grace Eyre will give you comprehensive training to fully prepare you for the role, so there’s nothing to fear. They also offer update training throughout the year and can sometimes match you up with a more experienced carer to mentor you through the first few months. I also attend Carer meetings, which Grace Eyre run, as making links with other experienced carers can be really helpful.
What are the benefits of Shared Lives to the person living with you?
It’s great for Johnny because he’s able to have 1:1 time, we’re similar ages so we actually have a lot in common and have similar interests. I’m really lucky as my friends and family have totally accepted Johnny as part of my life and he gets invited to as many nights out as me! My male friends take Johnny to football – they’ve recently bought him a ticket to go and see Chelsea play - his dream come true! A key benefit is living in a normal everyday environment and being able to do everyday things that most of us take for granted, as that is truly living your life.
Would you recommend being a Shared Lives Carer as a professional role?
Definitely! It’s a highly rewarding job and I’ve really benefitted too - I’ve made a firm friend! I’m paid for my role, but I also undertake other work too. When I started my role as Shared Lives Carer I spent a lot of time and energy into setting up the right support networks for Johnny, learning to travel, links in the community, daily activities etc. Because Johnny is so much more independent now, I can also take on other part-time work.
If you would like to know more about this extraordinary paid role maybe as a career change or back to work idea, contact us for more details.